Big Data and AI Advisory Group
Big Data and Artificial Intelligence in Childhood Epilepsy Research- What are the Views of Patients, Parents and the Public?
Welcome to the Advisory Group!
Emma is a first year PhD student in the NEST Lab at King’s College London. Emma’s research aims to identify early indicators of developmental differences in babies with early-onset epilepsy, to improve our understanding of how developmental challenges associated with childhood epilepsy may impact children and their families.
Emma will be recruiting an advisory group for a research project to help ensure that it meets the needs of, and includes the voices of those directly affected by childhood epilepsy. The project will explore patient, parent and public perspectives on Big Data and Artificial Intelligence approaches in childhood epilepsy research.
The advisory group will be made up of several members, including:
One to two adults aged 26 or over who were diagnosed with epilepsy as a child
One to two adult parents or carers of a young child (aged 5 years or under) with epilepsy
One to two young people aged 18 - 25 who were diagnosed with epilepsy as a child.
You can access the application form by clicking on the links below.
You can also:
Fill out this form on paper, and send us a copy of it by email
Fill out this form on the computer and send it by email
Speak to us on the phone or video call
Send us a video of yourself by email
One thing to note is that we are specifically interested in epilepsy with onset in early childhood and will likely prioritise this sort of experience, however if you feel your experience is particularly relevant for this project you are more than welcome to complete the application form, we'd love to hear from you.
If you are interested in applying to be part of the advisory group, please submit the application form by October 1st and Emma will get in touch with you once recruitment has closed.
Download the form using the links below.
Please take your time to read the handbook Emma created. The handbook answers any questions you may have about your role, your contributions, and the purpose of this project.
Further if you have any questions, you can leave us a message through the contact form.
OR
Send us an email at beestudy@kcl.ac.uk